Rationale:
Living with cancer often leads to isolation, particularly in oncosexual care that is frequently overlooked. Surveys show that 68% of people with cancer (PWC) report healthcare professionals do not address sexuality, and 73% are reluctant to initiate these conversations. This neglect can cause emotional distress and impact wellbeing. Many PWC feel unsupported, with few resources available, particularly for those outside traditional gender categories or with lesser-known cancers. The ‘Intimacy and Cancer’ (IAC) initiative was created from the author’s lived experience during a seven-year cancer journey with minimal oncosexual support and exclusion from gender-specific groups. IAC provides an inclusive platform for all genders and cancer types, offering peer-based learning and community support.
Method:
Participants were recruited through global online cancer support groups. They were invited to join a space to explore oncosexual concerns post-cancer, open to all cancer types and gender identities. The group prioritised safety due to the sensitive nature of its focus therefore, requests to join were individually vetted to ensure a respectful, secure environment for open and vulnerable discussions. The online format ensures broader access for those isolated by geography, stigma, or shame. Members share experiences, provide support, and learn in a safe, non-judgmental environment.
Impact on Practice:
A mixed-methods survey released within the IAC group explored experiences within the IAC space. Using both multiple-choice and short-answer formats, the study assessed impacts on isolation, communication, and quality of life. Findings exceeded expectations, revealing significant improvements in resilience, confidence, healthcare communication, and access to resources—fostering belonging, hope, and life-changing outcomes for participants.
Discussion:
This project demonstrates the need for greater awareness and support for inclusive oncosexual issues in cancer care. Expanding similar programs into clinical settings is recommended to reach more PWC. Collaboration between healthcare providers and peer-support platforms like IAC is key to addressing oncosexual needs.