Objectives: Aboriginal and Torres Strait Islander peoples (hereafter respectfully referred to as First Nations) experience poorer cancer outcomes compared to non-Indigenous Australians. Barriers in accessing and engaging with cancer care services contribute significantly to these disparities. There has been growing momentum to implement cancer coordination programs to better support First Nations peoples in navigating the cancer care system. However, to date, there is limited published evidence regarding the impact of such programs. In response to an identified community need, a First Nations Cancer Coordinator (FNCC) role was piloted at the Royal Melbourne Hospital.
Aim: This project sought to explore the impact of the FNCC program on the cancer care experiences of First Nations Australians.
Sample: Narrative-based, semi-structured interviews were conducted with ten First Nations patients or their family members who had received FNCC support, to explore experiences and perspectives relating to the FNCC program and cancer care more broadly. Interview transcripts were thematically analysed.
Procedures: This project utilised a co-design methodology, underpinned by First Nations governance. Ongoing partnership with a Community Advisory Group ensured that the project was culturally grounded and aligned with the needs and priorities of the local community.
Results: Barriers to care included inconsistent follow-up in community and survivorship, lack of support systems, logistical stressors and communication breakdowns. This project identified key areas through which the FNCC role could support barriers to care, including opportunities through cultural connections, relationship and trust building, and logistical support and coordination of hospital care. Additional recommendations for improved cancer care included improved access to community services and written summaries of medical information.
Conclusion: These findings suggest that First-Nations led coordination programs have the potential to significantly improve cancer care experiences and outcomes for First Nations Australians, thereby contributing to the reduction of cancer disparities.