Background/Context
Optimal cancer care principles presume consumers can access specialist resources that address their cancer experience and needs. However, many consumers lack confidence and knowledge to effectively navigate decisions.
For over 20 years, Breast Cancer Network Australia’s (BCNA) breast cancer resources (‘My Journey’) have addressed critical information and supportive care gaps. Through a consumer-led approach, My Journey was re-launched in March 2025 as an enhanced digital health experience reflecting the changing preferences of BCNA’s consumer network. It offers access to free, streamlined information and digital tools to support those affected through every part of a breast cancer experience.
Methods
BCNA implemented mixed methods approaches including co-designed research1, consumer workshops and interviews, user testing, and journey mapping. As part of its consumer-led implementation approach, over 80 consumers were involved including as project steering group members.
Impact on practice
With over 1.1 million page views in 2024, BCNA connects people to tailored information based on their diagnosis, treatment, location, priority population group, and care needs, and evidence-based online tools such as a side effects tracker and SMS-enabled support. These scalable initiatives support optimal care and can reduce downstream impacts on primary and community health services.
My Journey also offers digital referral pathways for healthcare professionals and builds clinical knowledge about breast cancer and optimal cancer care practices.
Discussion
BCNA’s national survey confirmed its role as a trusted provider of specialist breast cancer resources, identifying consumer preferences for accessible, useful, and streamlined information. Integration of existing digital resources, rather than duplication of information and investment, is required to successfully deliver optimal cancer care and meet digitally enabled national healthcare objectives2.
However, BCNA’s 2023 findings recognise person-centred care models must balance healthcare needs and preferences of consumers. While technology enables timely delivery, it can create additional barriers, highlighting the need for equitable approaches.