Poster Presentation 2025 Joint Meeting of the COSA ASM and IPOS Congress

Conceptual analysis of family and kinship “lineage” issues regarding genetic information in cancer genomic medicine in Japan   (126850)

Kiyoko Yanagihara 1 , Rieko Muta 1
  1. Nagano College of Nursing, Komagane City, NAGANO PREFECTURE, Japan

Background and purpose: In Japan, the genetic factor vis-à-vis disease is a sensitive issue. “Lineage” (inherited from ancestors) has created not only prejudice and discrimination from society but also a division of kinship. This study analyzes the concept of “blood lineage” and clarifies its definition.

 

Methods: Based on 12 papers and articles published in Japan, concept analysis was conducted following the Rodgers method.

 

Results: One “category” was extracted from each identified subcategory: three for antecedents, four for attributes, and four for consequences. Essentially, “lineage” means “connection,” “bloodline,” or “descent,” and it refers to the blood link inherited from ancestors. In other words, the term describes kinship or clan and refers to a genetic link. However, lineage denoted as “family history” has been alluded unscientific meanings and has engendered fear in people with regard to genetic diseases, thus heightening the inhibition and discrimination experienced by their families and relatives by those around them based on the illness(es) of such individuals. Lineage can be considered in two ways: first, the perception of a group of people who are related by blood, and, second, the inheritance of the group's characteristics. Notably, lineage is perceived as one's bloodline or the kinship identity of sharing an ancestor.

 

Conclusion: Awareness of bloodline issues helps deepen the spiritualistic perspective of culture, values, and beliefs, particularly when healthcare providers understand their patients. Healthcare providers should understand that people, in addition to the respect of their human rights, have the right to dignity, regardless of their genetic characteristics. They also need to realize that their attitude can mitigate discrimination, especially regarding genetic issues in society.