Poster Presentation 2025 Joint Meeting of the COSA ASM and IPOS Congress

From unmet needs to targeted care: co-designing an online resource hub and supportive care navigation tool for people diagnosed with pancreatobiliary cancer and caregivers (#648)

Katia Ferrar 1 2 , Chris Baggoley 3 , Merlyn Barreto 4 , Lisa Beatty 5 , Mark Brooke-Smith 1 6 , Chad Y Han 7 , Bogda Koczwara 1 , Michael Luppino 8 , Catherine Paterson 7 9 , Amanda Robertson 10 , Matthew P Wallen 7 , S George Barreto 1 6
  1. College of Medicine and Public Health, Flinders Health and Medical Research Institute, Flinders University , Adelaide, South Australia, Australia
  2. University of South Australia, Adelaide, South Australia, Australia
  3. Pankind, Pancreatic Cancer Australia , Sydney , NSW, Australia
  4. Blackwood Clinic , Adelaide, South Australia, Australia
  5. College of Education, Psychology and Social Work, Flinders University , Adelaide, South Australia, Australia
  6. HPB and Liver Transplant Unit, Flinders Medical Centre, Adelaide, South Australia, Australia
  7. College of Nursing and Health Sciences, Caring Futures Institute, Flinders University , Adelaide, South Australia, Australia
  8. Flinders Medical Centre, Adelaide, South Australia, Australia
  9. Central Adelaide Local Health Network, Adelaide , South Australia, Australia
  10. Cancer Council SA, Adelaide , South Australia, Australia

Objectives/purpose

Co-design 1) an online resource hub of Australian pancreatobiliary cancer online resources and services, and 2) a supportive care navigation tool for people diagnosed with pancreatobiliary cancer and their caregivers at Flinders Medical Centre in Adelaide, South Australia.

Sample and setting

Participants were recruited from Flinders Medical Centre and included current or recent pancreatic or biliary cancer patients, their caregivers, and allied health and nursing staff involved in supportive care.

Procedures

Co-design involved focus groups and interviews. For the online resource hub, cancer survivors and caregivers identified and prioritised the topics and provided feedback on layout. Think Aloud testing will be conducted to assess acceptability. For the supportive care navigation tool, allied health and nursing staff, and the research team identified local and appropriate supportive care services from Flinders Medical Centre, Flinders University, Cancer Council SA and primary care, mapped against cancer-related needs. The navigation tool design was also discussed.

Results

Three pancreatic cancer patients (1 male, 1 non-resectable), three caregivers (2 males) and six hospital staff (nurse, physiotherapist, occupational therapist, rehabilitation physician and 2 social workers) participated. The Pancreatic and Biliary Cancer Resource Hub website includes 14 topic areas (e.g. Diet & Food). Each topic area links to 3-5 online resources from Australian cancer organisations (e.g. Pankind and Cancer Councils) and other organisations/government departments (e.g. Advance Care Planning Australia). The supportive care navigation tool has four sections: 1. Screening section – Distress Thermometer and Checklist 2. Supportive Care Services Directory 3. Clinician Documentation and 4. Patient Take Home Summary.

Conclusion and clinical implications

The online resource hub and supportive care navigation tool may reduce unmet needs, facilitate timely access to appropriate information and supportive care services, and improve outcomes for people diagnosed with pancreatobiliary cancer and their caregivers. Future evaluation will determine their impact.