Background:
Lung cancer survivorship care is an emerging area of need, with growing numbers of patients living beyond their initial treatment. These individuals often face ongoing challenges that require coordinated, long-term support. Despite this, Australia lacks a standardised, lung cancer-specific survivorship care plan. This project aimed to address this gap by developing a comprehensive Lung Cancer Survivorship Care Plan (LCSCP) to support individuals following diagnosis and active treatment.
Methods:
The LCSCP was developed through expert consultation, evidence review, and consumer engagement. It provides personalised information on diagnosis and treatment history, including surgery, chemotherapy, radiotherapy, immunotherapy, and targeted therapies. The plan addresses both physical and psychosocial symptoms such as fatigue, breathlessness, emotional distress, and stigma. It also includes a structured surveillance and follow-up schedule detailing appointments, recommended tests, and red flags for recurrence or complications. Additionally, the plan offers evidence-based guidance on smoking cessation, nutrition, exercise, and mental wellbeing.
Impact on Practice:
The LCSCP delivers a patient-centred, practical framework that enhances communication between oncology, primary care, and allied health providers. It supports continuity of care and empowers patients and carers with knowledge and tools to actively participate in their recovery and long-term health. The structured approach also assists clinicians in delivering consistent, evidence-informed survivorship care.
Discussion:
This initiative fills a critical service gap in Australian cancer care by addressing the unique needs of people living with and beyond lung cancer. Key lessons include the importance of multidisciplinary input, patient co-design, and integration with existing care pathways. Future directions include national pilot testing, digital integration, and outcome evaluation. The LCSCP provides a foundation for a more coordinated, holistic, and proactive approach to lung cancer survivorship care.