Poster Presentation 2025 Joint Meeting of the COSA ASM and IPOS Congress

Developing self-care behaviours for lymphoedema prevention: A longitudinal comparative qualitative analysis (126565)

Miyako Tsuchiya 1 , Mariko Masujima 2 , Akiko Kimata 3 , Miki Mori 4 , Makiko Tazaki 2
  1. Research Institute of Nursing, Musashino University, Tokyo, Japan
  2. Graduate School of Nursing, Chiba University, Chiba, Japan
  3. Department of Nursing, Mejiro University, Saitama, Japan
  4. Department of Nursing, School of Health and Social Services, Saitama Prefectural University, Koshigaya, Japan

Objectives: Lifelong self-care is recommended for lymphoedema (LE) prevention. However, the process of developing self-care practices among cancer survivors remains unclear. This study aimed to describe the development of self-care over time, comparing survivors with and without prior self-care practices for LE. Sample and setting: Between September 2023 and June 2024, 14 breast (n=10) and gynaecologic (n=4) cancer survivors without LE participated in a 9-month online LE prevention programme in Japan. Sessions covered self-care, healthy lifestyle, stress reduction, and follow-up. Participants’ ages ranged from 31 to 62 years, and duration since cancer diagnosis ranged from 1 to 22 years. Procedures: Following institutional ethical approval, the participants were recruited through a hospital and a market research company. After providing informed consented, they completed a baseline survey and participated in the programme. Participants set their self-care goals and recorded their self-care behaviours, challenges, causes of anxiety and stress, coping strategies, and outcomes using monthly worksheets. They were classified into precontemplation (n=8) and action (n=6) groups. Content analysis was performed on the longitudinal qualitative data by group, and the findings were compared between groups. Results: Although the extracted categories were similar, self-care development differed between the groups. The action group reported difficulties with lifestyle modification, managing symptoms in the affected limbs, and continued self-care using external resources. This group used cognitive and behavioural approaches to manage their anxiety and stress and generally maintained a self-care habit characterised by ease and enjoyment. The precontemplation group had more practical questions about self-care and tended to postpone actual self-care. Some required more strategies to manage stressful personal lives and faced challenges in sustaining a self-care habit. Conclusion and clinical practice: Self-management developed differently depending on previous self-care practices for LE. Greater practical and psychological support should be tailored for survivors lacking prior experience of self-care.